ALLESSIA: STATUS PÅ HÆMANGIOM + START PÅ NY MEDICIN!

30. december 2015

alessia


Hej søde læsere! For nogle måneder siden skrev jeg dette indlæg om Allessias jordbærmærke/hæmangiom og kort efter vurderede vores læge, at vi skulle få kigget på den hos specialister. Jeg føler ikke, at det skal være tabu at tale om det her på bloggen… en del børn har jordbærmærker, og jeg kendte til det inden jeg fødte Allessia. Dog er der jo mange der ikke har set det før og spørger hvad det er, ja faktisk spørger alle hvad det er, hvilket er fair nok, at man undrer sig, så nu skriver jeg lidt om det. Jeg har selv prøvet at lede efter personlige erfaringer online, uden at finde særlig meget, så måske nogle kan bruge dette info. Da hun blev født var der blot et rød mærke bag hendes højre øre, men det begyndte hurtigt at vokse. I starten fik vi at vide, at det oftest går væk af sig selv, men eftersom det blev større og større og generede hende en del, så hun ikke kunne sove på højre side af hovedet, så blev vi sendt videre af vores egen læge. Vi var først til dermatolog og så videre til børneafdelingen på Rigshospitalet, hvor de målte på den og mærkede den. Ofte ser man at de kan gå helt væk ved 1-års alderen, men det er jo selvfølgelig meget forskelligt og kommer an på størrelsen. Allessias var blevet ret stor og vi fik anbefalet at hun fik medicin for det. Jeg var lettet over, at der ikke skulle foretages andre indgreb, men troede egentlig, at den bare ville gå væk med tiden eller begynde at blive mindre, som den gør hos de fleste børn. Dog voksede hendes kun, og efter anbefalingen besluttede vi at begynde på pillerne. Det er meget små piller, som nemt kan blendes ind i hendes mad, hvor hun slet ikke bemærker det. Jeg må indrømme, at selvom at det er små piller, så var jeg ikke glad for tanken om at min lille baby skal være på medicin hver dag og havde 1000 spørgsmål til lægen, så typisk mor her. Jeg blev dog beroliget med, at det er meget normalt at behandle hæmangiom med disse piller og at en del får dem. De er udover det super billige og hun skal have dem i ca. 1 år. Dog er der ikke garanti for at den forsvinder helt, men næsten, dog kan de komme igen, så derfor den lange periode. Så dem tager vi indtil videre…

Bivirkninger…. jae! Vi fik at vide, at hun kunne blive mere urolig end normalt om dagen og sove uroligt om natten. Men det var ikke alle børn, der fik bivirkningerne. Allessia var MEGET aktiv inden vi startede på pillerne, altså Mortens og mit energiniveau kan ikke følge med, så jeg havde svært ved at forestille mig, at det kunne blive vildere, meeeeen jo jo, det blev det! Allerede fra dag 1 var hun heeelt oppe at ringe hele dagen og sov først kl. 01 om natten, hvor hun ellers normalt sov kl. 20-21. Hun får piller om morgenen og om aftenen, og jeg tænkte at det måske bare var en uheldig dag, men nu har hun været på pillerne i 2 uger og hun sover ca. 2 x 1 time i løbet af dagen og falder i søvn kl. 22-00, men oftest ved midnat. Så man kan sige, vi kan tydeligt mærke bivirkningerne. Meeeeeen, det har til gengæld gjort, at hun har sovet igennem om natten og hun vågner kun hvis hun taber sutten, og kun enkelte gange har jeg varmet mælk op til hende i løbet af natten. Og når hun vågner, så er det kl. 10-11 stykker!! Hold nu op, vi sover igennem for tiden, haha… LOVE IT!

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233 kommentarer til “ALLESSIA: STATUS PÅ HÆMANGIOM + START PÅ NY MEDICIN!”

  1. Hej! Held og lykke med jeres kære barn, men husk at det ikke er en ulykke hvis det ikke forsvinder. Jeg har selv et barn på 3 år som har et jordbærmærke. Dette er mindre, men det sidder dog midt på panden, hvilket gør at det ses tydeligere.
    – Jeg har et spørgsmål som jeg grubler selv over. Hvordan har i tænkt jer at bære jer ad hvis det ikke forsvinder? Vil i lave et indgreb, eller blot lade det være? Og hvordan vil i fortælle jeres barn om det, så barnet ikke føler sig forkert?

  2. Hej Irina! Jeg har en veninde som arbejder i bog og idé, hun har snakket meget om en bog der hedder “kaninen der gerne ville sove”. Hun har nogle veninder der har børn, og den bog har reddet deres liv! Kom til at tænke på den pga Alessia’s søvn problemer. Så den kunne måske være et forsøg værd

  3. Hej Irina! Jeg fik selv et jordbærmærke da jeg var 3 dage gammel på brystet tæt ved hvor armen starter (hvis du ved hvad jeg mener), men jeg er nu 17 år og det er stadig ikke helt væk, men der er ikke meget at se. Din datter kunne muligvis have sådan en slags som mit der først går væk ved en 18 års alderen (det skal lige siges at jeg aldrig har været plaget af mit og at jeg har accepteret det hele mit liv. Håber du kan bruge det til noget 🙂

  4. Hej I,

    Jeg har tre børn og jordbærmærkerne er på vej til at forsvinde eller er helt væk på alle tre. To af dem har mindre modermærker på steder man ikke kan se, når de har tøj på. Jeg tror egentlig det er arveligt, siden alle mine har haft jordbærmærke, men der er ingen evidens for det hehe.
    Hvis jordbærmærket ikke forsvinder og det generer hende, så gør noget ved det. Ellers ville jeg bare vente og se tiden an og ellers acceptere det og kalde det et skønhedsmærke 🙂

  5. Hej Irina.
    Jeg har selv som lille haft jordbærmærker/hæmangiom (staves). Jeg havde det fra det ene øre til det andet, og det dækkede fra cirka munden og ned af halsen, samt inde i munden. Et slemt tilfælde, som krævede medicin. På mig gik det væk igen, og da jeg var 3 år kunne der kun ses mindre rødeplamager. Jeg fik i en alder af 10 til 12 år laser for at fjerne det sidste. Så ud fra egen erfaring går det i sig selv, medicinen vil sikkert hjælpe.

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